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American Journal of Medical Quality
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Illinois Medical Home Project: Pilot Intervention and Evaluation

Kristin M. Rankin, PhD

Division of Epidemiology and Biostatistics, School of Public Health, University of Illinois at Chicago, Illinois, krankin{at}uic.edu

Andrew Cooper, MPH

CADE Research Data Management Group, School of Public Health, University of Illinois at Chicago, Illinois

Kathleen Sanabria, MBA, PMP

The Illinois Chapter, American Academy of Pediatrics, Chicago, Illinois

Helen J. Binns, MD, MPH

Mary Ann and J. Milburn Smith Child Health Research Program, Children's Memorial Research Center, Northwestern University, Chicago, Illinois

Charles Onufer, MD

Illinois Division of Specialized Care for Children (DSCC) and the Illinois Chapter, American Academy of Pediatrics, Chicago, Illinois

A "medical home" provides accessible, continuous, comprehensive, family-centered, coordinated, compassionate, and culturally effective care. This study implemented and evaluated the pilot phase of a pediatric practice-directed medical home quality improvement (QI) project focused on improving primary care for children and youth with special health care needs (CYSHCN). Six practices received training, QI team development and facilitation, and receipt of mini-grants for QI projects. Practice-level and parent-level evaluations were obtained at pre-intervention and post-intervention. The intervention was well-received. Many areas of improvement were found on practice-level evaluations, especially family-centered care and QI activities. Poor response rates limited the interpretation of family-level outcomes; 26% completed baseline outcome evaluations, and 64% of initial respondents completed them post-intervention. Practice education and implementation of QI teams to plan individualized strategies for the practice are feasible ways to seek to improve outcomes for CYSHCN. Modifications of evaluation strategies are needed to enhance response rates for family-level evaluations. (Am J Med Qual 2009;24:302-309)

Key Words: medical home • pediatrics • children and youth with special health care needs (CYSHCN) • families • quality improvement

This version was published on July 1, 2009

American Journal of Medical Quality, Vol. 24, No. 4, 302-309 (2009)
DOI: 10.1177/1062860609335759
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